WHAT A global meeting on international cooperation and public health policies focussing on research, diagnosis, development of and access to treatment, and care for rare diseases, will be held in Tokyo.
WHO should attend? The VII ICORD Conference will offer a platform for the exchange of perspectives for medical and healthcare professionals, patients and patients’ groups, basic and clinical researchers, policy-makers, government officers and pharmaceutical, biotechnology and medical device industries.
CONFERENCE ORGANIZATION The conference is organized by a global panel of ICORD to improve the welfare and wellbeing of patients with rare diseases and their families world-wide through better knowledge, research, treatment, care, information, education and awareness of rare diseases.
The number of patients with each rare disease is very small in each country, but rare diseases do not know country boundaries. Consequently, they are best studied internationally. Attend this conference for the opportunity to join discussions of the ideas and global needs of the rare disease community. You will also meet key members of the international community involved in policies, diagnosis and treatment of patients with rare diseases.
The themes are:
Health policies on rare diseases and orphan drugs globally
Ethical issues and social aspects of rare diseases